I got involved to share my experiences in the hope that it would help others understand and appreciate some of the key physical, psychological and emotional challenges, that patients and their carers face daily

Carer of someone living with long term and terminal illness

Improving care

Join or start new discussions on research aiming to improve services for people with cancer, respiratory disease, organ failure, and neurological conditions, as well as people living with more than one condition

Living & dying well

Join or start new discussions on research investigating issues relating to how we live and die, including care for older people, support for caregivers, cultural issues, and access to care for disadvantaged groups

Managing symptoms

Join or start new discussions on research into new ways of managing common and distressing symptoms, especially breathlessness, but also pain, fatigue, depression, muscle weakness and muscle spasms.

Measuring changes

Join or start new discussions on research developing, refining, and implementing measures, tools, assessments, questionnaires to help detect meaningful patient-centred changes and outcomes related to palliative care and rehabilitation.